Sam Berns died on Friday. You may remember him from the HBO documentary about his life. If you haven't seen it, you should.
At one point the documentary describes the discovery of the protein responsible for his medical condition, and Sam explains how this "takes the burden off of me because I don't have to think of progeria as ... an entity." Sam was a remarkably bright and eloquent kid and I remember watching this scene and thinking about how it crystalized what is undoubtedly a complicated and painful set of emotions into a completely relatable concept. It made me cry.
Sam was also a remarkably happy kid despite the challenges he faced and the unescapable truth that his lifespan would be much shorter than it should have been. Here's how Sam achieved such happiness, in his own words.